January 11, 2012
January 10, 2012
Going to the 2012 Abilities Expo!
Bertrand received a surprise Christmas gift: a trip to the 2012 Abilities Expo in Atlanta, Georgia!
The Abilities Expo takes place February 17-19, 2012 at the Georgia World Congress Center and admission is FREE!
We're excited to see and try out items for Bertrand!
January 9, 2012
School Parking Spot
Remember our parking issues last year?
There are two new wheelchair accessible parking spots at Bertrand's school.
Please note the sign. :)
January 6, 2012
Run to Walk 2012
It's time to gear-up for the 4th annual Run to Walk! Run to Walk is a charity run helping children with disabilities pay for physical therapy so they can reach their physical goals and greater independence!
(Basically, it benefits the Now I Can Foundation which has worked wonders for Bertrand.)
Bring the whole family for lots of fun!
There will be a 5K race and a 1 Mile fun run/walk.
In the 5k race there will be cash prizes for the top 3 men and women overall ($75/$50/$25) and a prize for each M/F age group winner.
Join us after the run for carnival games for kids, food, and a raffle for great prizes!
Cost is $15 for the 5K and $10 for the 1 mile walk/run until May 11th (price increases to $20/$15 after May 11, and race day price is $25/$20). Groups of 5 can register for $65 until May 11th (price increases to $90 after May 11, and race day group rate does not apply).
Online registration will close Friday May 18th at Noon.
January 5, 2012
Getting Back on Track
Getting back on track blog-wise after the holidays has proven challenging. I'm hoping that posting something--no matter how long or short--will renew the posting habit. :)
The past month has been difficult since Bertrand's girlfriend Hannah passed away. The emotions involved have been hard and confusing.
Also emotionally complex has been Victoria's total eclipse of every milestone Bertrand ever accomplished. She has consistently stayed ahead of every development guide. Crawling at 5 months-old. Cruising at 7 months-old. And now at 8 months-old, she can crawl up stairs and just began using the sign for "milk". Of course, it's relieving in that we don't have to question her health. But, it's tough in that we've entered uncharted territory--we're essentially first time parents!
With that have come realizations about our limitations and desires as parents. While I've been acting as Bertrand's at-home therapist for 4 years, that is not the role I want. I want to be his mother--and Victoria's. With the ways things currently are, I feel as though I am failing at both roles. As hard as it is to say, I need help.
To clarify, I need help that doesn't come with strings attached.
So, put the word out, we're looking for a physical therapy student interested in working with Bertrand in the mornings before school, 5 days per week. The student would follow the program set forth by a licensed physical therapist at Now I Can.
Ideally I will put those hours to work on physical therapy for myself (to slow the disintegration of my knees), to dedicate more time for Victoria, or to improve my general sanity.
I'm terrified. Please wish us luck!
January 3, 2012
Things to think about...
Today, Bertrand had his first appointment with an epileptologist in Utah. We're waiting to hear back from scheduling for a 2 day overnight EEG. The doctor also left us with two new treatments to research and think about:
Next steps will be taken based on the EEG findings.
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