Hmm ... is this a new development? Daniel's had it since he was born and at this point it's pretty stable, but if it just began I can see where that could be worrying. Hope you guys are doing well out there and keeping warm!
I'm a little surprised, too, at the sound of this diagnosis being 'new'. You did not share your reaction to this...? I used to interact a lot with a young man who is legally blind, has nystagmus and is a professional photographer. He does some nice work. Here is a connection page to him: http://www.flickr.com/people/richfavinger/Barbara