We are Cristina and Matt, parents to three young kids, Bertrand, Victoria and Winston. Bertrand (age 6) is a handsome fellow who loves school, Elmo, water, music and movies (favorites include "How to Train Your Dragon" and anything Elmo).
Why we blog:
- To keep friends and family up to date.
- To support other families with children in similar situations.
- To document because, let's face it, we're getting old. ;) There is a LOT of stuff to remember. Having it in an accessible, searchable format helps.
This blog is not professional medical advice nor is it a substitute for consulting your doctor. What has worked (or failed) for us will not determine what may or may not work for you or your child. So, please don't sue us!
If you think your child may have a form of N-glycanase deficiency, please let us know! We'd love to help.
How to contact us:
Email: bertrand at might dot net