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December 31, 2012
December 28, 2012
Concert for Children with Special Needs
Thursday, January 24, 2013 | 7 PM
Utah Symphony | Utah Opera offers an annual concert for children of all ages with special needs and their families. We present this concert because we know that many families cannot attend cultural events together because their special needs child acts in distracting ways. We feature our Opera Resident Artists with the Utah Symphony on the Capitol Theater Stage in a special concert where everyone understands the difficulty of keeping these family meembers quiet in their seats. This concert is FREE but registration is required.
REGISTER HERE
The doors of Capitol Theater will be opened at 6:30 PM, and the concert will begin at 7 PM. After the concert, please join us for cookies in the lobby.
December 25, 2012
Christmas Hope
On Christmas Eve, KSL ran a story on Bertrand. It was a story of "Christmas Hope".
Bertrand's diagnosis made 2012 an enlightening year.
Now, we hope the future holds discovery of a treatment or cure.
We are grateful to live in a community that cares about our family and especially our son.
We wish you and your family the very best, today and always.
December 24, 2012
Tonight on KSL at 10 PM
Tonight at 10 PM, KSL is airing a story on Bertrand.
If you're in the area (UT, ID, WY), tune in to watch. :)
December 23, 2012
December 22, 2012
We met Rachel!
Oh, happy day! We met Rachel, Leah, and Alex from Signing Time! We also met the wonderful Lucy, Rachel's youngest daughter. They were kind, gracious, and fun! Alas, we did not meet Hopkins. ;) But the kids each got a plush Hopkins toy to take home! This event was a fundraiser for Operation Ghana. We actually learned a lot about service dog options for Bertrand from Rachel. She was so good with him! We are so happy to have had an opportunity to meet this inspiring family!
December 20, 2012
December 13, 2012
December 12, 2012
(Almost) Wordless Wednesday
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| Today was our beloved Miss A's last day. We all cried. We will miss her. :'( |
December 11, 2012
Signing Time: Book & DVD Signing
Bertrand and Victoria will be carting their Signing Time gear to the Melty Way in Midvale, UT on Saturday, December 22, 2012. I can just imagine their little faces meeting Rachel in real life! Their minds will be blown. :) All proceed go to benefit Operation Ghana, which provides scholarships to students attending the Ghana School for the Deaf.
December 10, 2012
Balloon Fun
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| Bertrand has fun with a balloon during therapy. There were many giggles. :) Thanks, Miss A! |
December 9, 2012
Bertrand turns 5
Another year. Another emotional birthday.
Yesterday was Bertrand's birthday party, and it was by far his most favorite party ever. He stayed awake, interactive, and happy the entire time. :)
Today, on Bertrand's actual birthday, we all recovered from said party (with lots of snuggling), and reflected on our amazing little boy.
We will never take the time we have with him for granted.
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| A photo from yesterday's celebration--Bertrand's favorite birthday party! |
When you were born, I joked that I loved you so much that I didn't care in which field you got your Ph.D.
I had no idea that by 5 years old, someone would end up getting their Ph.D. in you.
You've led many on a journey through extremes in the human experience.
Today, I'm grateful that you're still here to lead.
May it always be so.
Happy birthday! :)
--Matt (aka Daddy)
December 8, 2012
5th Annual "National Believe Day"
Bertrand and Victoria dropped off letters to Santa at Macy's. For each letter received, Macy's will donate $1 to Make-A-Wish Foundation. And on December 14th, their 5th annual "National Believe Day", Macy's will donate $2 per letter to Make-A-Wish.
Many of our dear friends have benefitted from the generosity of the Make-A-Wish Foundation, and it's quite likely that some day Bertrand will too.
"The Make-A-Wish Foundation grants the wishes of children with life-threatening medical conditions to enrich the human experience with hope, strength and joy. Based in Phoenix, the Foundation is one of the world’s leading children’s charities, serving children in every community in the United States and its territories. With the help of generous donors and more than 25,000 volunteers, the Make-A-Wish Foundation grants a wish every 38 minutes. It has granted more than 212,000 wishes in the United States since its inception in 1980. Visit the Make-A-Wish Foundation at wish.org and discover how you can share the power of a wish."
Macy's 5th Annual "National Believe Day"
Many of our dear friends have benefitted from the generosity of the Make-A-Wish Foundation, and it's quite likely that some day Bertrand will too.
"The Make-A-Wish Foundation grants the wishes of children with life-threatening medical conditions to enrich the human experience with hope, strength and joy. Based in Phoenix, the Foundation is one of the world’s leading children’s charities, serving children in every community in the United States and its territories. With the help of generous donors and more than 25,000 volunteers, the Make-A-Wish Foundation grants a wish every 38 minutes. It has granted more than 212,000 wishes in the United States since its inception in 1980. Visit the Make-A-Wish Foundation at wish.org and discover how you can share the power of a wish."Macy's 5th Annual "National Believe Day"
MACY’S LOCATIONS ACROSS THE COUNTRY!
Date: December 14, 2012
Time: All Day
December 7, 2012
December 6, 2012
December 4, 2012
December 3, 2012
IEP: 1st Goal Accomplished!
Every year, Bertrand has an individualized education plan (IEP) meeting before his birthday with the school district. This year, several goals were modified, a few were added, and, for the very first time, one was accomplished. Bertrand effectively and reliably can use switches. To say "we are proud of him" is an understatement, but we'll say it anyway. :)
Congratulations, Buddy!
Mama and Daddy are so proud of you!
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