We have been practicing hard and at a minimum of three times a week, as per the therapist's direction. The therapist was deeply impressed by our dedication. Bertrand has made a great deal of progress. We couldn't be more proud of him.
However, the therapist at Shriners didn't see Bertrand's hard work and efforts in the same light.
First he said that insurance wouldn't cover the chair for Bertrand. So we found ways to get one donated and pay for one.
Then he said that Bertrand would need to practice 3 times a week. So we found ways to get Bertrand to practice at least 3 times per week.
Now he said that Bertrand's cortical visual impairment would likely prevent him from passing the safety requirement...
The pieces of the puzzle finally fell into place. He won't recommend a power wheelchair for Bertrand no matter what we do.
He had already made up his mind about Bertrand. He was just being obtuse about letting us know it.
Bertrand's cheerleading squad is vast. (And, I love you all for it!) So, whenever someone doesn't pick-up the pompoms, I am confused and, honestly, sad.
But, I think this is actually an opportunity in disguise. We were back to spreading ourselves a bit thin. (I know. I know. It's chronic. Apparently, I can't help it!) This situation has me re-evaluating the merits of a power wheelchair.
While Bertrand does enjoy the power wheelchair, he also increasingly enjoys standing up and taking steps--activities which are conveniently assisted by the TAOS. Such weight-bearing activity is great for his bones, his muscles, and his bowels. Overall, much better for him than using a power wheelchair.
Maybe the power wheelchair was a distraction? Maybe the therapist at Shriners actually did Bertrand a favor?
On our drive home from the appointment, I told Bertrand, "Forget that guy. He doesn't know you. You'll WALK. That'll show him!"
And when he does, you better believe he'll be surrounded and cheered by the people who believe in him.