July 5, 2012
A Bumpy Month
After Matthew's blogpost about Bertrand's medical journey, I made the mistake of reading comments on the internet about our family. Never again. While 99.9% of the people in the world are amazingly good (and I know that these are the ones I should focus on), that remaining 0.1% is of questionable humanity. They hurt me more than I care to admit.
More critically, the path to a treatment for Bertrand is proving to be every bit as complicated or more-so than we anticipated. Some of the earliest possible clinical trials start in 2013. But the feeling that we are working against a clock increases with every hospitalization and additional symptom. More often than not this past month, I've felt like we won't make it in time.
All that said, I am grateful for the friends and family who haven't given up on us. Those of you who've offered love, support, and let us take the time necessary to lick our wounds--thank you. As an introvert, I am notoriously quiet when wrapping my head around big issues. Until I can chart a path out of this hole, talking is difficult. I promise I am not ignoring anyone. I'm just utterly focused and, if honest, exhausted. Love, C