September 28, 2012

RARE Patient Advocacy Summit Simulcast

We'll be tuning in to watch this year's RARE Patient Advocacy Summit with the hope we can attend next year! Below is a message from the Global Genes Project.
In conjunction with the first annual RARE Tribute to Champions of Hope Gala, Global Genes | R.A.R.E Project will hold a Patient Advocacy Summit on September 28, 2012, from 9 a.m. to 3 p.m. at the Balboa Bay Club & Resort in Newport Beach. Patient advocates will engage, learn, and discuss a variety of topics that directly affect them leading to collaborations that will benefit the entire rare community.

Although this event is currently full, you may register to watch the summit simulcast live via the web or later at your convenience. If you would like to join us, please register at in order to receive the simulcast link.

Thank you and we hope you can join us and watch the simulcast!

The RARE Team

Streaming video by Ustream

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