February 27, 2012


Bertrand completed his EEG/CCTV this weekend. He was discharged early thanks to a good recording of his nightly seizure.

His seizure at 11:30pm was about 30 minutes long and rescue medication (versed) was administered by the hospital staff.

Typically, he has between 1 and 3 of these seizures per night, but thanks to the versed that was the only one that night.

Fortunately, we were able to confirm that these seizures are NOT apneic! Phew!

The discharge orders (which looked like boilerplate) say to administer diastat rectally for seizures longer than 10 minutes, but he's been having these seizures nightly for 9 months! We would be giving him diastat nightly!

Before proceeding with this course, we're waiting for confirmation from his neurologists that this is how we should proceed.

We probably won't hear back for another 1-3 weeks on the results of the full EEG.

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