January 4, 2011

A Slight Detour

Matthew comforts Bertrand.

Bertrand has a habit of keeping things interesting for medical personnel, and he wasn't about to cut the staff at Cleveland any slack!

After sleeping most of the morning away, this afternoon Bertrand woke up with some labored breathing, and proceeded to pee some blood. Twice. (Urine cultures are pending.) His pulse and heart rate were elevated. Upon checking his O2 saturation, it was between 82 and 86%. The respiratory therapist didn't like the look or sound of his breathing. He was put on oxygen. (Bertrand is at 95% with 1.0L.)

The pediatric team was called in. Also not liking Bertrand's breathing, the sound of his lungs and elevated heart rate (165!), the pediatrician and attending neurologist admitted Bertrand to the Pediatric Intensive Care Unit (PICU). Chest x-rays have been taken, blood has been drawn, IV fluids have been started (Bertrand has refused to eat or drink since 1pm), and a urine catheter will be started.

He has since had another diaper with a bloody casing. The working theory is that at best Bertrand has a urinary tract infection. At worst Bertrand is developing kidney stones--on the ketogenic diet and on zonegran these are very common. It's not pleasant, but Bertrand is in as good a spirit as could be expected. And, if there were ever a time and place to get sick, while inpatient at the Cleveland Clinic, one of the world's best hospitals, is it!


  1. On the bright side, indeed....the place to get sick.

    Praying for Bertrand.

  2. Ohhh, that's no fun. If he really does have stones I hope they get zapped quickly. (Been there, done that, and never want to do it again.) Hugs to all of you.

  3. oh no! I hope he gets better soon.

    I read your last post and it's just amazing! In my head right now...I'm thinking "paradise". I'm so glad you guys are there!

  4. http://www.texasmedicalcenter.org/root/en/TMCServices/News/2007/12-01/Boy+Recovering+From+Rare+Folate+Deficiency.htm

    we are praying for you.We are family from Ukraine....maybe this will help....maybe this is the case?