August 18, 2010

Gelastic seizures?

Bertrand has continued to get "foggier" as the effects of the steroids attenuate, and his seizures return.

We're also trying to figure out if he's having gelastic seizures.

These episodes seem to come at random, and I captured a couple on my cell phone camera.

Here's one in the hospital registration room:



Here's another one outside at Barbacoa:



What has us concerned is that there are no (obvious) triggers for these episodes.

He'll be sedate, or even a little bit grumpy, and then he bursts into these moments.

Is he genuinely happy? Or are there gelastic seizures?

Are we being paranoid?

45 comments :

  1. It doesn't sound like being paranoid given his history. Does he always have confusion following these episodes or other indications of post-seizure behavior?

    You and Matt know B better than any other people on earth. If your gut tells you this is abnormal for him, then that's a big clue. Let's just hope it's a new behavior and not a new seizure. And likely only time will tell which it is.

    You can tell his seizures are coming back little by little and you are already taking immediate steps to try and prevent them regaining their foothold. Regardless of what is the cause of this laughter, it sounds like you're doing everything precisely as you should be doing, Cristina.

    ReplyDelete
    Replies
    1. Hey, You are doing a very good job with this, like I would like you to share some IPL live Streaming details. So, share IPL live streaming details in your next post.

      I love to share my Indian railways website which has Live Train Running Status and Information tool along with PNR status. You can check Live Train Status with Ease.

      Delete
  2. Is it happening often enough that you may catch it on EEG. I guess I think we know our kids best and if it feels not "normal" there's probably a reason. My son's gelastic seizures don't appear to have an obvious trigger and there is no post ictal phase. He literally seizes and goes back to what ever activity we were doing. We did notice when we tried to wean his Vigabatrin last fall that they dramatically decreased but unfortunately he started having spasms so we had to restart it and the laughing seizures have slightly increased again but still not as bad as they were when he was little. They are very hard emotionally. Sometimes they feel so real. They may happen in the middle of play and seem appropriate but then it becomes clear that he isn't really responsively laughing. Several of his therapist have made comments over the last couple years about his cute seizures. Maybe cute to them but not to us. I hope this proves to be innocent for you guys. Here's a link to video of Codys gelastics if that helps at all. (Hope it works still)
    http://www.onetruemedia.com/shared?p=9f84298a47ebb72ae006da&skin_id=701&utm_source=otm&utm_medium=text_url

    Good luck
    Laura
    http://www.carepages.com/carepages/codygarrett

    ReplyDelete
    Replies
    1. This post a good one and I would love to share it if you like my 2016 rio Olympics streaming and NBA Scores Live Blog.

      Delete
  3. Agreeing with above - don't worry about being paranoid. You are careful and informed parents.

    I thought it was good news that you are okayed to begin diet treatment again. Hoping that takes effect as he comes off steroids.

    Barbara

    ReplyDelete
  4. okay, now say it to me...you may think you're going crazy, but you're not. :)

    Just paying it forward sista!

    If you are paranoid, then I need to be committed. You are just an awesome, aware, and incredible parent.

    ReplyDelete
  5. My daughter has episodes like this, that we think are seizures as well. The laugh sounds weird, different than her normal laugh. Is this what Bertrand sounds like normally when he laughs? Does he take big gasp breaths while laughing normally? Our neuro says galastic seizures are uncommon but that they are more than likely underdiagnosed.

    ReplyDelete
  6. Yes, the laugh sounds weird and unlike his usual laugh. His eyes are unfocused and pointed upward-ish. He doesn't respond at all to us during them. Afterward he is a bit disoriented but kinda gets back to doing what he was doing before. It has even happened a few times in his sleep.

    It is creepy.

    Fortunately, these episodes only happen once or twice every few days. Unfortunately, this means we're unlikely to ever catch them on an EEG. After watching videos of other children's gelastic seizures, we are now pretty convinced that's what these episodes are.

    Bertrand is approaching age 3 when most brain myelination should be complete, so we shouldn't be surprised that his seizure types are changing. After all, we started the new year off with tonic seizures for the first time. Maybe we can hope this is the extent of his evolving seizure types?

    ReplyDelete
  7. Hi. I think you should totally trust your gut on this.... Are they controllable by tinkering with his meds? I had never heard of gelastic seizures.

    Christina, I am so excited for you guys about Duke. Dr. K is an absolutely incredible woman, and the entire staff at Duke made everything go by smoothly. Max actually had a great time on the day of the infusion‚ there was both an art and music therapist on staff. And the infusion itself was almost a non-event, after all the buildup, just a 15-minute IV drip.

    You'll have some time free, and the park nearby (can't recall the name) is very relaxing to walk around. If you're up for it, there are great BBQ places, our favorite was The Original Q Shack.

    Christina, you are an amazing champion and cheerleader for Bertrand. Who, by the way, is going to charm ALL of the nurses, I am sure.

    ReplyDelete
  8. I am scowling at my calendar right now! While you are at Duke, I'll be in Kentucky. I would rather bring you lunch, say hello, be your errand girl, squeeze that sweet little boy, introduce Ben to a new friend!

    We do almost everything at UNC. I don't know Dr. Escolar, but if I need to get Ben in to see her, consider it done. Ben sees Dr. Muge Calikoglu (genetics) and Dr. Joshua Alexander (rare diseases and disorders). His pediatrician is affiliated with Duke, which I concede to be a top-notch school of medicine/hospital despite my status as a native Kentuckian. Speaking of the Commonwealth, what a lovely, small world this is! I'll give a shout-out to your parents while we're in the 'ville!

    Thank you so much for sharing Bertrand's gelastic seizures with us. I wish you still had no idea what that even means, but I hadn't heard of them either. I am glad to be aware.

    I adore your boy, your blog, and you! You ARE an amazing champion and cheerleader for Bertrand- inspiring! I am so grateful for the opportunity to be in touch with you and read his story. Hope you have a safe, successful trip to Raleigh. I can't wait to hear all about it!

    ReplyDelete
  9. Epilepsy is associated with sensory disturbance, loss of consciousness, convulsions, Infact is one of the worst illness someone could ever experience, it comes when you least expect it. My Brother was a victim of this, we have carried him to so many places before we met a Doctor called Lawson, who gave him a medication which he took for 4 weeks and now the problem is gone. If you are having epilepsy contact him with this email: dr.lawson52@gmail.com or call him +2348073689106, he has permanent cure to it.

    ReplyDelete
  10. This comment has been removed by the author.

    ReplyDelete
  11. It also depends on your own desires, you can select items or customize pre-designed it. Zipper monogrammed cosmetic bags, large or canvas jacket made of cotton or leather totes and so on: there are the elections to write. They can carry a bunch of stuff women's career because it is very durable leather sheath construction.

    ReplyDelete
  12. Hypnosis is not a form of mind control. YOU are always in control. I suggest you make unwanted inappropriate or disruptive, your mind will reject it and will be fully awake. It cannot be forced to do anything against the will or moral code under hypnosis. hypnotist Atlanta

    ReplyDelete
  13. Perhaps the only drawback of organic baby products is more expensive than ordinary ones. This, many parents and caregivers makes them natural organic baby products inaccessible. So not only cannot afford to lose sleep over it if you do not always buy organic. There are probably more important things to worry about!

    ReplyDelete
  14. I appreciate with your article writing,here its my first visit and i found a great information here.

    - slither.io
    - wings.io
    - vanar.io
    - lazerdrive.io
    - diep.io

    ReplyDelete
  15. Following the option would be applied, the stylist will dry the hair having a hair dryer after which focus on sections having a hot hair straightened. Heat in the hair straightened that is usually set at approximately 450 levels seals the keratin solution in to the brazilian hair. Customers are sometimes alarmed once they see lots of steam coming from their hair at this time, try not to be alarmed. This really is perfectly normal and area of the straightening process.

    ReplyDelete
  16. Contact, two other men in the male breast is the right elbow and left elbow woman sitting at the right hand touching the right side of the female breast. This dance posture provides a very elegant look like floating royal courts in Europe and double the dance floor has its own resources.ballroom dancing Atlanta GA

    ReplyDelete
  17. there are lots of things you need to consider when purchasing cheap products in the shop. Some pawn shop marietta ga only sell products which are in good shape; there are also a couple of others that may dupe you into thinking that you're set for a great deal while in fact, you've bought something that isn't worth its cost.

    ReplyDelete
  18. It is advisable to inquire about when the inspector is part of an expert Home Inspection organization. Particularly if your condition doesn't need home personnel to become licensed, it is crucial that the home inspector concord goes for an association and abides by some standard practices and code of ethics that need professionalism.

    ReplyDelete
  19. A Shared Web bitcoin vps server typically comes with an operating-system placed on it, and also the host then installs the program they need - they set the server just as that they like it, after which clients outlay cash certain sums of money to buy just a little space around the server. The client has just as much control of that space because the host will allow them to, as well as their performance depends on however many clients are Discussing the server (100s, possibly).

    ReplyDelete
  20. Very nice and interesting post. Beautifully structured and very close to facts. I found myself lucky to go through it. Hope to have more post in future like this. Do you want to check Rio 2016 Olympic? Vist followings:
    Watch Olympics live streaming
    Rio Olympic 2016 Opening Ceremony
    Rio 2016 olympics Tickets
    Rio 2016 Olympics Rowing Schedule

    ReplyDelete
  21. Conventions and special occasions have numerous needs in which a lanyard and ID badge are actually unnecessary, along with a health and fitness wristbands is preferred. The wristband far less intrusive around the convenience of the attendee, and it is much simpler to scan for that person in the show.

    ReplyDelete
  22. SEO needs time to work, it does not happen overnight. Your seo in las vegas should have the ability to supply you with a monthly are convinced that shows the way you are progressing with the internet search engine recent results for your key phrases. They ought to also have the ability to run PPC campaigns in your account as well as create content and duplicate for the site.

    ReplyDelete
  23. The southern Rhone is centred by Grenache although it is most frequently mixed with Syrah in addition to Mourvedre and Cincault along with hands filled with others. You will find appellations within the south like Chateauneuf du Pape, Gigondas and Vaqueras. They are all Grenache based red wines. A lot of the Cote du Rhone wines also range from french restaurant atlanta ga southern Rhone and they're less expensive for each day. The term "cote" means the nearby area. Keep in mind that the red wines from the northern Rhone are 100% Syrah and also the red wines from the southern Rhone are Grenache or blends centred by Grenache.

    ReplyDelete
  24. the quantity of education necessary is larger, runs receive nursing certifications for new gradsgreater salaries than nursing assistants do. They're salaried, instead of hourly, using the average beginning salary beginning around $40,000. Theirhttps://en.wikipedia.org/wiki/Nursing careers are in least as secure as other allied health care professionals, and since there's a larger dedication to training, run careers could even become more secure.

    ReplyDelete
  25. Getting regular Samaritan Medical & Dental Group is essential to keep our white teeth. Obviously just like important is our daily dental hygiene. Brushing three occasions each day, flossing every day, gargling and maintaining a healthy diet food are important. However, these functions of taking care in our teeth aren't enough. Soon, plaque and tartar develop will occur regardless of how diligent we're with this flossing and brushing. When these complaints arise, time to obtain dental care has showed up.

    ReplyDelete
  26. The instruments provide us with the data we must have for those major facets of hair fiber research and assist us in developing hair care items and our production programs. Our organization manufactures raw virgin hair into finished hair extensions and bulk hair for hairpieces and hair pieces on-site. Our research lab is an integral part of developing each chemical and mechanical application.

    ReplyDelete
  27. Basically clean my carpet, eco-pro service group could it be harmful to my carpet? Definitely Not! Really just the opposite. As pointed out above, inglis carpet cleaning ottawa cleaning your carpet correctly, in the correct times, greatly elevated the helpful existence of the carpet.

    ReplyDelete
  28. Talent agencies focus on finding projects or employment for stars, music artists, models and other kinds of entertainers particularly within the entertainment field. There are plenty of talent Myticas Consulting agencies that may be based in the country and most of them as well as the talent agencies present in Ottawa, are handled by artists unions and legal jurisdiction as recommended through the regulating rules from the condition.

    ReplyDelete
  29. Among other services provided by your dentist, implant surgery can address the problem of loss of tooth in an exceedingly efficient way. Some might stress about cost dentist tijuana mexico implant surgery could be costly and isn't normally included in insurance, but it's a 1-time expense. Unlike other options for example dentures, crowns and bridges, an implant is generally permanent. Provided the individual practices good dental hygiene, the outcomes possess a 95% rate of success.

    ReplyDelete