August 16, 2010

Emily Dickinson: Poet, Recluse, Epileptic**?

Photograph by Jack Illingworth.
"Hope" is the thing with feathers—
That perches in the soul—
And sings the tune without the words—
And never stops—at all—

And sweetest—in the Gale—is heard—
And sore must be the storm—
That could abash the little Bird
That kept so many warm—

I've heard it in the chillest land—
And on the strangest Sea—
Yet, never, in Extremity,
It asked a crumb—of Me.

Emily Dickinson

Emily Dickinson's words have inspired generations. In particular, the poem above seems to have struck a chord within the special needs community--perhaps because Emily Dickinson is one of us?

Known for her reclusiveness as much as her creativity, it was long thought that Ms. Dickinson suffered from mental illness. New research revealed in her biography Lives Like Loaded Guns: Emily Dickinson and Her Family's Feuds indicates that her condition was more neurologic than psychiatric. According to author Lyndall Gordon, the drugs prescribed to Ms. Dickinson were ones used at the time for epilepsy.

With the diagnosis of epilepsy, many strange aspects of Emily Dickinson's life tumble into coherence. Her reclusiveness transforms into the common fear of having a seizure in public. Her unmarried state is due to the stigma associated with seizures--in many states "epileptics" were forbidden by law to marry. Her white wardrobe and adherence to routine? An attempt to reduce overstimulation and resulting seizures. Even her creativity? Temporal lobe epilepsy has long been associated with creative genius.

This book doesn't focus solely on the poet's epilepsy; it includes the many familial struggles she faced. But, given the hurdles which individuals with epilepsy still face today, the beauty that Emily Dickinson managed find and create is made even more astounding.

Thanks to Lyndall Gordon's investigation, Emily Dickinson, who has long inspired us with her words, now inspires us with her life.


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**Disclaimer: I am using the word "epileptic" here for historical accuracy and grammatical consistency. The term "epileptic" is no longer used, as individuals suffering from epilepsy are not defined by their condition. After all, no one refers to someone suffering from cancer as a cancerian, right? That said, as I've witnessed some spectacular showdowns over the use of the E-word, please don't crucify me!

39 comments :

  1. Hi Cristina,
    This has been one of my favorite poems since way before I had little John. In fact, when I opened your blog and saw the name of Emily Dickinson and the picture of the bird I immediately thought of the poem before reading your post! Thanks for the insights!

    ReplyDelete
    Replies
    1. Who will believe that i will ever be a man again,weak erection and premature ejaculation is one of the must horrible sickness on earth to man,i was confuse and lost,after 9 years i came across a man called Olumba so i contact him and that is how my problem was solve,finally I'm now a full man again,if you have this problem visit him @Email,drolumbaayi@gmail.com OR call him +2347068002488.

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    2. weak erection and premature ejaculation is very bad and Evil sickness to man,i have experience this for the pass 2 years and i know the pains,but known i am a full man again by the help of DR Olumba,he was introduce to me by my friend,he have the cure and his cure is a permanent cure, so if you have this same problem contact him, and your problem of this sickness will be over,Email drolumbaayi@gmail.com OR call him +23407068002488

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      Delete
    4. My name is John and i am happy today,because it has been a long time since i have this problem of weak erection and premature ejaculation,hope was lost because i cant even penetrate or erect,and a man that those not erect is not a man,but now i erect and i can now have sex any time any day,i was cured by a Doctor OLUMBA,so if you want to be strong and erect again you can contact him @ Email.drolumbaayi@gmail.com or call him @ +2347068002488.

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    9. I am a victim of weak erection and premature ejaculation,for the past 4 years,and for this past 4 years my life was horrible,one day i saw a post of a man being cured by a Doctor called Dr Olumba,so i contact him and i get the cure from him,and my 4 years disaster and pains were like a dreams so if you have this problem of weak erection and premature ejaculation you can contact Dr Olumba for help,Email drolumbaayi@gmail.com OR Call him in +2347068002488.

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    10. I am 42 and my husband is 57 with ED. It’s been a 6 years journey to today. We’ve tried all the pills, lotions, injections, etc. Nothing worked anymore. His desire was there but it just doesn’t happen very often anymore. He had high blood pressure, cholesterol and diabetes (takes pills) He was thinking that surgery is the only option left to do. It was so permanent and I wasnt sure he’s ready for that. Nor I for that matter. I missed sex don’t get me wrong. But it’s really seperated us and made it uncomfortable to be intimate at all. UNTIL I MET DR AKIM on an internet website,people taking about his good works and his good native herbs and i also ordered for the herbs and i got it in two days and my husband used it and till today my husband has been active in the bed room with his ED cured.all thanks to Dr Akim.Anyone else with similar issue should order for his herbs at (bestspellhome@gmail.com)

      Delete
  2. I love when I hear about people with "disabilities" who went on to do incredible things. People that are deaf, blind, autistic, have CP...and yes, epilepsy. Very inspiring indeed!

    ReplyDelete
  3. Heh, sugar magnolia used the word 'autistic'. Word battles still going on in that community but you will not find me entering the fray except to say that whatever word is rejected, another one must be chosen. Expect the chosen word to be rejected eventually, too. Like I did here:
    http://jerobison.blogspot.com/2010/08/affluence-and-autism-does-one-cause.html

    Your post is beautiful, Cristina. Just think that the word police need to pay attention to the context of how the words are used. Barbara

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  4. Unfortunately, the word police strike online all the time regardless of context. The episode that scarred me, however, took place in person at an epilepsy conference last November. At the end of my row, a young man and his wife asked a question of a panel. The young man said he was just diagnosed as an "epileptic". (I believe he received a head trauma in the war.) One of the panel members dressed him down for using the E-word in front of the entire auditorium! The poor guy turned bright red and I think neither he nor his wife asked another question the entire conference. I felt heartsick for them. Here they were just learning the ins and outs of a new debilitating condition to be publicly humiliated for not knowing the current trendy word for it. Someone could've taken them aside at the end of the session to say something instead, but that's not how it happened. :( Context is key. I wish more people were sensitive to it.

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  5. That is a horror story, Cristina. (I bet I could think of a diagnosis for that panel member.) He not only silenced the man and his wife but others in the audience, too. (I've seen classroom teachers use that technique. Gah.) Disclaimer necessary language. Gah.
    Barbara

    ReplyDelete
  6. Thinking back, you're right Barbara! I didn't raise my hand after that either. :( I was really afraid I'd accidentally say something wrong too. I am sure I wasn't the only epilepsy-newbie who was made worried and self-concious when instead we should've all been learning and supporting each other.

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  7. Cristina and Matt,
    I came across your website after really enjoying this: http://matt.might.net/articles/phd-school-in-pictures/

    I am in tears. Dickinson's poem and Bertrand's sweet smile and beautiful energy just melted my heart. Thank you for sharing your story and for tirelessly seeking support for research around difficult genetic disorders. Bless you in all you do.

    I also wanted to share with you a quote that touched my heart as I've been struggling to understand the meaning behind suffering. Here is my blog post about it: http://iamdinabanana.blogspot.com/2010/08/those-who-suffer.html

    "Human beings are created from the dust of the earth; but do they resemble dust? Grapes come from vines; but do grapes look like vines? Does theft have the same shape as gallows? Does piety resemble eternal life? Nothing resembles its consequences. So the root of pain and torment is not evil." - Rumi

    Love to you and countless prayers. Enjoy every breath and moment with your son, he is truly a gift of beauty to this world =)

    ReplyDelete
  8. My family has a history of epilepsy in it. Currently, my pregnant sister, but also my deceased grandmother who suffered the destructive "treatments" of the 1940's "hospitals." We really have come a long way in our understanding of what the disease is. I just wish they would figure out how to CURE it...

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  9. Saw your websight and thought i would give perspective. I have bipolar and take lamitcal which is also used for epilepsy treatment. I am also a decendent of emily dickenson. There is some genetic history there. Bipolar has a nero componet so it could go either way. Thank you for yoir article. God bless

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  10. though there has been many advancements for the way of treating mental Conditions at the past 50 years, there is certainly still a good certain stigma surrounding your current views at mental illness. Most of the people still mistakenly believe That an individual which has a mental illness is easily lazy or they will location blame for the parents whether your own patient is often a child.Community Mobbing

    ReplyDelete
  11. Am Lucas by name,my son alway have seizure every two week in a month,which was affecting his life and he was not going to school properly any more,i have to do all i can to save him,i got the contact of a doctor,who helped me out by giving me the medication which my son took for a week,for a year now he has been doing fine please any body have such issue should contact the Doc on Alegbe3@gmail.com or +2349027116105,to get your self out of that embarrassing illness.

    ReplyDelete


  12. Hello,I'm Harry Westly i just want to Say my testimony on how i was cured from the problem of weak erection and premature ejaculation.he made me a full man again,i have been suffering from weak erection for the past 9 years. I saw a post of Mr Albert and how he has been cured permanently by Dr Agbo , i quickly contacted him and told him my problem and after taking his the medication which i got, that was the end of my erection and quick ejaculation problem, now i can perform stronger and even better than before his product has no side effect. Here are his contact if you need his help agbospelltemple@gmail.com

    ReplyDelete
  13. Hello everyone, i had a poor erection from birth, i noticed myself when i was 7years old. my penis is very small that its only use is to pass out urine. when i was 23, i tried to come close to women, my penis will not stand erect to make love. this has been my greatest problem until i met a man called Dr.EBOSA. he assured to cast a spell on me for long penis and erection and high sperm count. it seems like a dream to me, i decided to give it a trial because this has been my greatest problem and medical attention have not been of help. it seems shock to me. i made love with the girl i have always dream to be with and i intend to get her pregnant. i know its not easy to live in this condition so i cannot keep this miracle to myself. i urge everyone in similar condition to contact Dr. EBOSA today via email ebosaherbalremedy@hotmail.com. Any problem you are, he has a way of bringing solution to it. if mine is possible, then i can say nothing is impossible. contact him today via email ebosaherbalremedy@hotmail.com. there will be a miracle, and you will share testimony as i am doing now. feeling happy!!! grateful heart!!!


    Josh

    ReplyDelete
  14. i was one's a man with the problem of weak erection,because of too much masturbation during my young age,until i saw the post of some persons testifying about one Dr Ebosa,who can cure the problem of weak erection,i also contacted him and he told me all i need to do.that was how i got the treatment,and now am cured permanently.am free again.Any one with such problem can also contact him on ebosaherbalremedy@hotmail.com OR or just call him +2347059498969

    ReplyDelete
  15. Am Tanya Albert from United State Join me celebrate this day which my Lord God has made for using this great and powerful healer called Dr Ekpiku that cured my HERPES SIMPLEX VIRUS disease which has been eating me up for over 3 years now without solutions, i tried looking for solutions online, and through hospital, they keep on giving me orientations about drugs that can extend my years. now since Dr Ekpiku has helped me to cure my disease with the use of herbal remedy and knowledge of his forefathers everything has been going well now, i owe you greatly for healing me so if anybody need is help or you also want to get cured you can also contact him on his email address: ekpikuspellhomeofgrace@gmail.com or ekpikuspellhomeofgrace@hotmail.com THESE ARE THE THINGS Dr. Ekpiku. . HERPES . HIV/AIDS . CANCER .HEPATITIS B

    Thank,
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    ReplyDelete
  16. weak erection is a problem i have vow to help any time i hear that any one close to me is suffering from it, i was unable to perform my duties as a man for 11 years, until i use the product made by Dr martins. all i did was just order and a booking was made the following day i received the product with the complete instruction on how to use it, After taking it i found out that my erection problem is gone and that i can now perform well as expected, for his product please contact him. drmartins2015@gmail.com

    ReplyDelete
  17. weak erection is a problem i have vow to help any time i hear that any one close to me is suffering from it, i was unable to perform my duties as a man for 11 years, until i use the product made by Dr martins. all i did was just order and a booking was made the following day i received the product with the complete instruction on how to use it, After taking it i found out that my erection problem is gone and that i can now perform well as expected, for his product please contact him. drmartins2015@gmail.com

    ReplyDelete
  18. Hello i am faith evans from united kingdom let me share this testimony to the world to hear about him too this man really exit I was HIV positive over 9year I have being in medication and I try to look for cure to my problem and I go through internet doctor and I found a traditional doctor named DR.Abor I contacted him for help he give me all his laws and rule that if I get cured I should write about him and that is what i'm doing now, this man ask for some information about me, which I give him this man cure me from HIV what a great man thank for your help when he get the information he told me that he is about to work on it 20 to 30 minute this man email me and told me what to do for the curing which I did after all the things needed for the cure is provide the man call me in 24 hours later and tell me to go for test what a great day to me I was negative thanks Dr.Abor contact him email address, Aborgraceherbalhivcure0@yahoo.com or Aborgraceherbalhivcure0@yahoo.com THESE ARE THE THINGS Dr. Abor. . HERPES . HIV/AIDS . CANCER. weak erection and premature ejaculation, you can also contact him 0n +2348071635034

    ReplyDelete
  19. hello everybody my name is faith evans I live in UK. This is a testimony I want to make. I was an HIV positive for 8 years taking anti retrovirus. As I was reading online some 5 months ago I saw a testimony on cure of HIV. I decided to give a try. Now as am telling you am very negative tested 4 times in 5 months after finishing my cure. The cure is a pure herbs from Africa shipped to me through DHL. My cure took about 5days.Dear brothers and sisters if you are out there, please the cure is out and rush to have yours. If you are interested, email the researcher using Aborgraceherbalhivcure0@yahoo.com I will encourage every person who come across this mail to cure yourself if you are positive Aborgraceherbalhivcure0@yahoo.com you can call him any time on +2348071635034
    thank to dr Abor

    FAITH EVANS

    ReplyDelete
  20. Am Brian, my wife left me because I was sexually weak due to that I became so frustrated .I have visited so Many hospitals for solution but all I get was a temporary solution until I came across a post of Catherine hood how this great doctor helped her from virginal bleeding and she was cured. I also contacted him for my problem and he directed me on how to get his product which I did few days later I found out that my pennis was now erecting very normal and I can now perform more than before. I we for ever be grateful to DR Alegbe for his healing I have settled with my wife and we are living happily now. U can reach he on any problem you think do not have solution and you we be surprise how you we be cured. all my friends are all thanking me for introducing them to Dr Alegbe. thank you Dr Alegbe so much for all you have done for me. Contact he on dralegbe@gmail.com or +2349027116105

    ReplyDelete
  21. I Thank God, the erection problem (premature ejaculation and weak erection) which make my wife leave me is finally solved, I never knew that my sex drive can come back to normal until I met a Doctor, I have earlier saw a testimony of man named Jason, then I gave a try since I have contacted many but all to no avail just for my erection to be normal, It was like a dream, I am now living happily with my wife. If you are having related problem do not hesitate to contact him with his email: drjack430@gmail.com

    ReplyDelete
  22. I NEVER BELIEVED IN LOVE SPELLS UNTIL I MET THIS WORLD'S TOP SPELL CASTER. HE IS REALLY POWERFUL AND COULD HELP CAST SPELLS TO BRING BACK ONE'S GONE,LOST,MISBEHAVING LOVER AND MAGIC MONEY SPELL OR SPELL FOR A GOOD JOB.I'M NOW HAPPY & A LIVING TESTIMONY COS THE MAN I HAD WANTED TO MARRY LEFT ME 2 WEEKS BEFORE OUR WEDDING AND MY LIFE WAS UPSIDE DOWN COS OUR RELATIONSHIP HAS BEEN ON FOR 2YEARS... I REALLY LOVED HIM, BUT HIS MOTHER WAS AGAINST US AND HE HAD NO GOOD PAYING JOB. SO WHEN I MET THIS SPELL CASTER, I TOLD HIM WHAT HAPPENED AND EXPLAINED THE SITUATION OF THINGS TO HIM..AT FIRST I WAS UNDECIDED,SKEPTICAL AND DOUBTFUL, BUT I JUST GAVE IT A TRY. AND IN 7 DAYS WHEN I RETURNED TO USA, MY BOYFRIEND(NOW HUSBAND) CALLED ME BY HIMSELF AND CAME TO ME APOLOGIZING THAT EVERYTHING HAD BEEN SETTLED WITH HER MOM AND FAMILY AND HE GOT A NEW JOB INTERVIEW SO WE SHOULD GET MARRIED..I DIDN'T BELIEVE IT COS THE SPELL CASTER ONLY ASKED FOR MY NAME AND MY BOYFRIENDS NAME AND ALL I WANTED HIM TO DO... WELL WE ARE HAPPILY MARRIED NOW AND WE ARE EXPECTING OUR LITTLE KID,AND MY HUSBAND ALSO GOT THE NEW JOB AND OUR LIVES BECAME MUCH BETTER. IN CASE ANYONE NEEDS THE SPELL CASTER FOR SOME HELP, HIS EMAIL ADDRESS IS: tinalovespell@yahoo.com HOPE HE HELPS YOU OUT OUR OPPORTUNITY ... CONTACT THIS GREAT SPELL CASTER VIA EMAIL: tinalovespell@yahoo.com OR CALL HIM ON: +2348078467513 ONCE AGAIN THANKS TO DR. IBUDU
    1. He can help you cast a spell to get pregnant.
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    7. Love spell
    8. HERPES SIMPLEX VIRUS
    9. H.I.V Cure , and lot more.

    ReplyDelete
  23. I just want to Say my testimony on how i was cured from the problem of weak erection and premature ejaculation.he made me a full man again,i have been suffering from weak erection for the past 9 years. I saw a post of one Mr Ehis and how he has been cured permanently by Dr Alegbe john , i quickly contacted him and told him my problem and after taking his the medication which i got, that was the end of my erection and quick ejaculation problem, now i can perform stronger and even better than before his product has no side effect. Here are his contact if you need his help alegbe3@gmail.com or call him on is mobile +2349027116105

    ReplyDelete
  24. This comment has been removed by the author.

    ReplyDelete
  25. I am 42 and my husband is 57 with ED. It’s been a 6 years journey to today. We’ve tried all the pills, lotions, injections, etc. Nothing worked anymore. His desire was there but it just doesn’t happen very often anymore. He had high blood pressure, cholesterol and diabetes (takes pills) He was thinking that surgery is the only option left to do. It was so permanent and I wasnt sure he’s ready for that. Nor I for that matter. I missed sex don’t get me wrong. But it’s really seperated us and made it uncomfortable to be intimate at all. UNTIL I MET DR AKIM on an internet website,people taking about his good works and his good native herbs and i also ordered for the herbs and i got it in two days and my husband used it and till today my husband has been active in the bed room with his ED cured.all thanks to Dr Akim.Anyone else with similar issue should order for his herbs at (bestspellhome@gmail.com)

    ReplyDelete
  26. TESTIMONY OF HOW I GOT CURED FROM HERPES SIMPLEX VIRUS This is real take it serious, who will believe that a herb can cure herpes, i never believe that this will work, i have spend a lot getting drugs from the hospital to keep me healthy, it got to a time that i was waiting for is death to come because i was broke, one day i heard about this great man called Dr. Ekpiku who is well know for Herpes, HIV, and Cancer cure, i decided to email him I didn't believe him that much, I just wanted to give him a try, he replied my mail and Needed some Information about me, then I sent them to him, he prepared a herbal medicine (CURE) and sent it through Online Courier Service for delivery, he gave my details to the Courier Office. they told me that 3-5 days I will receive the package and after receiving it, i took the medicine as prescribed by him at the end of the one week, he told me to go to the hospital for a checkup, and i went, surprisingly after the test the doctor confirm me Herpes simplex virus negative, i thought it was a joke, i went to another hospital and was also negative, thank you for saving my life, I promise I will always testify of your good works. if you are herpes simplex virus patient, contact him and I am sure you will get cured, contact him via: ekpikuspellhomeofgrace@gmail.com. or ekpikuspellhomeofgrace@hotmail.com or call +2348073673757 OR whatsup him..... THESE ARE THE THINGS Dr. Ekpiku. . HERPES . HIV/AIDS . CANCER

    ReplyDelete

  27. All the thanks goes to Dr Alele,for 7 years i could not have sex and i was frustrated and hope was lost,then a friend of my introduce him to me by giving me his contact so i contacted him and buy the drugs from him,after taking the drugs for 16 days i have sex the next day,i was very happy in my life like never before,i last long and i was able to go for 3 round to say the truth i was very very happy,if you have this problem contact Dr Alele,Email
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    ReplyDelete
  28. Hello Reader
    My Name is, Natasha Johnson
    my ex-boyfriend dumped me 4 months ago after I caught
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    I want him back in my life but he refuse to have any contact
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    ReplyDelete
  29. Hello readers am Brain Garvin by name
    In the summer of 2014 My 91 year old father was admitted into the hospital for two weeks. He was finally diagnosed with a cancer tumor on his spine. His Dr wanted to start chemo and radiation treatments asap.. He was in a lot of pain and was put on a strong pain killer. A short time later he sought out a second opinion from another Dr. The test and recommendation the same thing . I called and talked to my father about his wishes.He wanted some relief from the pain, his pain medication was not helping with all the pain. I recommended he try Essiac Tea which my wife had been taking occasionally. He said he would give it a try. I ordered him three bottles of the concentrate.He started taking it as soon as it arrive. Within the next few weeks the pain was still there. He stopped taking his pain medication. About a month after taking the Essiac Tea he went to see his Doctor. and His Dr was suprised that my father still looked worried and very sick. and he give us some drugs, but When my father later now went back to see his Dr.about a month later his test results show some sign of cancer again. His Dr told him he cant live up to a month again. so suprisely a friend of mine just called me at the same sport at the hospital and i explained my fathers cancer illnes to him and immmediatly he told me about a great spell caster and also a hebalist man called DR OGWUA He told me that he saw how people testify about this great man's work on the internet but not only that, the hablist man heas also cure his mother cancer with his wonderful herbs. that he can cure this my fathers cancer too. and i surmorn courage and immediately he gave me the DR OGWUA,Via Emial Address:Ogwuaspiritualspellhome@hotmail.com or i should call him direct with his phone number:+23481567594231244,and i called the spell herbal man and he gave me some herbs and told me how i should be using it,that the herbs has no side effect. he told me that after 7 days i should take my father to the hospital for check up if there is still cancer tumor on his spine, that after 7days if the cancer is still there that i should called him failk herbalist dr. but if the herbs really cure the cancer tumor i should tell the whole world about his great works. now i and my father are now living testimony telling the whole wide world today that there is no herbalist dr better, stronger, and perfect even upto this great dr ogwua because indeed he has really save my dada's life. here again is his Via Email Address:Ogwuaspiritualspellhome@hotmail.com or call him directely +2348156759423.
    ALL THIS HE EVEN TELL ME HE CAN CURE.hand warts,HIV/AIDS, mouth cancer,skin cancer,cellulite,chickenpox,cold sore, diaper rash,fifth disease,herpes simplex virous,gout on foot, Psoriasis,weak erection,
    And i so much believe he can really cure them all this deasise and infections, all thanks to dr ogwua for saving my dad's life indeed am so greatful Dr.

    ReplyDelete