March 25, 2010

Wear Purple Tomorrow!

Purple Day is an international day to promote epilepsy awareness held on March 26th. Purple Day was started by a 9 year old girl in Canada named Cassidy Megan. Cassidy wanted to let other people with epilepsy, especially children, know that they are not alone. Our friends at Bookscoops are hosting a Purple Day challenge on their blog to join in Cassidy’s efforts to increase epilepsy awareness world wide. Here is what Cari, from Bookscoops, has to say about Purple Day.

Why is Bookscoops going Purple for Epilepsy?

My [Cari's] oldest daughter was diagnosed almost 5 months ago with epilepsy. She has Generalized Seizure Disorder and experiences Tonic-Clonic Seizures, formerly known as Grand Mal. This has been a painful journey as I have watched my daughter struggle with this disorder. She is very bright and full of potential. Epilepsy is only part of her as a human being as she loves to read, spend time with friends, swim and play violin. One of my biggest frustrations is the lack of information and misconceptions surrounding this disorder and particularly the lack of funding it receives. I feel that one of the best ways to help her deal with this is to raise awareness. Her life with epilepsy can be made easier and safer as more people know about this common disorder and learn how to respond with appropriate first aid.

Cari's daughter in purple.

In addition, we wanted to raise awareness about epilepsy because it is the second most common reason people see a neurologist behind migraine. Epilepsy affects 50 million people world wide and about 3 million people living in the United States have epilepsy. More people have this condition than multiple sclerosis, cerebral palsy, muscular dystrophy and Parkinson’s disease combined. Unfortunately, a lot of myths and false ideas are still being perpetuated about epilepsy (such as it is a mental condition or that epilepsy is contagious). Some of these misconceptions have caused many people to become isolated and live in fear and shame that someone will find out about their condition and many people have faced discrimination based on their medical diagnosis.

Who Can Participate and How to Participate?

There are number of ways to participate in our first annual Purple Day Challenge and because we love to promote literacy we are combining both reading and Purple Day starting on March 21st and ending on March 31st. While our blog focuses on children and adolescent literature we are inviting anyone to go purple!!!! So that means any person, book blogger or blogger who wants to promote Purple Day may participate. To make this easy on you (and us) choose any or all of the following.

  1. Post the Purple Day Button on your blog starting on Sunday March 21st through Saturday March 27th and write a post promoting Purple Day. Please note we have received permission to use the Purple Day logo as part of this challenge. If you choose this option you must read and agree to the copyright notice on the Purple Day website by using the logo you are stating that you have read and agree to their terms of use. Two sizes of buttons are at the bottom of this post.
  2. Read a book about epilepsy and post a review. For a list of books for children go to Epilepsy.Com.
  3. Read a book by or about a famous person with epilepsy and post a review. Cari’s daughter’s favorite so far is The Day-Glo Brothers: The True Story Behind Bob and Joe Switzer’s Bright Ideas and Brand-New Colors, which also is a Cybils winner for 2009. Some names you might know are Harriet Tubman, Alfred Nobel and Charles Dickens and more recently actor Danny Glover, football player Alan Faneca and track star, Florence Griffin Joyner known as Flo Jo. For a more complete list visit The Epilepsy Foundation or if you’re a fan of Wikipedia see the List of Famous people with Epilepsy, which to be honest seems to be the best documented list we’ve found so far.
  4. Read a book that promotes self-confidence and acceptance in children and post a review. Suggested books so far with a very appropriate title, Purplicious by Victoria Kann and Elizabeth Kann and Little Skink’s Tail by Janet Halfmann, illustrated by Laurie Allen Klein.
  5. If you or a family has dealt with epilepsy write a post sharing your experience.
  6. Wear purple on March 26th and tell people why you are wearing purple.
  7. Click on the link to watch the 60 Minute Special on Epilepsy and write about what the things that you learned you in a blog post, or if you don’t have a blog put it in the comments for this post.
  8. Have an idea not listed above submit it and we’ll give you another entry. Cari’s niece is making 600+ purple ribbons for her school. So if you think of something put a comment in the comments below.

For every entry we receive, Cari will donate 25¢ per entry for a total of fifty dollars to a non-profit organization that works towards epilepsy awareness and/or research and Holly will match Cari’s donation. Multiple entries are possible. One entry equals doing one of the seven items listed above.

Our Goals for this Challenge

Our goal is three-fold 1) to promote Purple Day and raise epilepsy awareness, 2) to dispel myths surrounding epilepsy and 3) to compile a more comprehensive list of books that portray epilepsy and/or people with epilepsy accurately, especially for children. Finally we do hope to raise some money for epilepsy awareness.

How to Enter and When Does it End?

Sign-up in the comments below telling us who you are and what you are planning on doing to participate. Make sure you leave a link to your blog. If you post about this challenge please leave us a link in the comments to your post and we will put together a list of everyone who participated with links to their blog posts as the week progresses. The Purple Day mini-challenge begins on March 21st and ends March 31st, midnight MST.

Rewards for this Challenge:

We would love to offer prizes, but at this point we don’t have anything to offer except the good feeling that you are helping other people become aware of a disorder that affects millions of people world wide. We might consider it for future years. However, remember Cari is willing to donate .25¢ up to a total of fifty dollars and Holly will match her donation to a non-profit organization that works towards epilepsy awareness and/or research for each person who commits to participate by doing any of the 8 options above. See above for details of how to enter and participate.

Non-profit Groups that promote Epilepsy Awareness, Education and Fund Research

Purple Day – Founded by nine-year old Cassidy Megan to promote global epilepsy awareness.

CURE Citizens United for Research in Epilepsy – raises money for epilepsy research.

Epilepsy Foundation an organization dedicated to advocacy, education and research.

Epilepsy Association of Utah – The group in Cari’s state dedicated to educating the public and supporting persons and their families with epilepsy.

Anita Kaufman Foundation – Dedicated to educating the public to not fear epilepsy.

22 comments :

  1. I posted this on my FB for everyone to see! Thank you for blogging about this.

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    Replies
    1. NATURAL & EFFECTIVE TREATMENT TO SEIZURE: Our son has temporal lobe epilepsy, He has seizure and had a grand mal with rage episode (8 men to hold him down), Our son's seizure is constant throughout the day according to EEG results. We had used several medicine which include: 600 Epilem 100 topolex 150 Epitec X2 Daily Dopoquel and cilift, Keppra, Topomax lasted for about 3 days, but I put an end to that due to my son losing weight and being lethargic. I recently got dr williams herbal medicine,that's a natural medicine that cure my son Epilepsy with no side effect. It is an herbal medicine. it is a permanent cure and effective treatment of Epilepsy, for more info, you can contact Dr.William with this drwilliams098765@gmail.com for his product

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  2. Cristina, Thank you for posting about Purple Day!

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  3. We welcomed our daughter Olivia joyfully into this world on August 25, 2010. She appeared to be a happy, healthy newborn and for two months, she was. On October 24 our lives were forever changed when our sweet girl began having seizures. The next day, we learned why. Olivia was diagnosed with Aicardi Syndrome, an extremely rare and random genetic mutation. Her brain did not form properly, and in addition to other physical and developmental challenges we were told to expect Olivia to have seizures every day. EVERY DAY. And - with rare exception - she has. For almost two years. I learned about Lawson when I had search the whole herbs in town without no hope.I could not bear to see my daughter going through this problem at the early age of her life. I had no option left than to contact Lawson and then I made an order of his herbal medicine. His medicine has change my daughter's health and she is now a happy baby. My daughter is my future. if you are having seizures contact him on this website www.healthsolutionclinic.jimdo.com or email at dr.lawson52@gmail.com thank you.

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  4. Natural medicine for epilepsy.
    My daughter started having seizures in 2008 and she was diagnosed later that year of epilepsy. We tried all the medications, drugs and therapy but it continued and she felt her end has come because she had seizure in front of the whole class this really made her angry, frustrated we usually used injections to keep her normal again and this do nor normally last long. All drugs failed and there was no improvement on her condition. A church member gave me Dr Humphrey's contact and told me how he helped her neighbour using his medicine. I got the medicine and used it and it was really good, since then he has improved and the seizures are gone. If you need to contact him just reach him directly on josephalberteo@gmail.com for advise and for the medicine.

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  5. NATURAL & EFFECTIVE TREATMENT TO SEIZURE: Our son has temporal lobe epilepsy, He has seizure and had a grand mal with rage episode (8 men to hold him down), Our son's seizure is constant throughout the day according to EEG results. We had used several medicine which include: 600 Epilem 100 topolex 150 Epitec X2 Daily Dopoquel and cilift, Keppra, Topomax lasted for about 3 days, but I put an end to that due to my son losing weight and being lethargic. I recently got dr williams herbal medicine,that's a natural medicine that cure my son Epilepsy with no side effect. It is an herbal medicine. it is a permanent cure and effective treatment of Epilepsy, for more info, you can contact Dr.William with this drwilliams098765@gmail.com for his product

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  6. NATURAL & EFFECTIVE TREATMENT TO SEIZURE: Our son has temporal lobe epilepsy, He has seizure and had a grand mal with rage, Our son's seizure is constant throughout the day according to EEG results. We had used several medicine which include: 600 Epitol 100 Zarontin,
    150 Epitec X2 Daily Dopoquel and cilift, Keppra, Topomax lasted for about 3 days, but I put an end to that due to my son losing weight and being lethargic. I recently got dr williams herbal medicine,that's a natural medicine that cure my son Epilepsy with no side effect. It is an herbal medicine. it is a permanent cure and effective treatment of Epilepsy, for more info, you can contact Dr.William with this drwilliams098765@gmail.com for advice and his product

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  7. ALL THANKS TO DR WILLIAMS FOR THE GREAT DEED HE HAVE DON FOR MY FAMILY.This information will be useful for Epilepsy patients who is willing to use herbal medicine. My daughter had temporal lobe epilepsy, She had seizure and had a grand mal with rage episode. Our daughter's seizure is constant throughout the day. We had used several medicine which include: Epilim and Keppra, experience seizure control at the cost of serious debilitating side effects. It was during a casual conversation with a friend that I learned about herbal Dr. William, it does not have any side effect. I am glad to say that he has been seizure-free since July of 2016 after taking William medicine. this a miracle cure?contact him for more detail (drwilliams098765@gmail.com)

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  9. Hello viewers all over the world am Jacky scob, I want to testify of what Dr Lewis hill did for me. i was having a very notorious and serious sickness called seizure and i was very in lost of hope i never believed i was going to be cured until i meant these great man called Lewis hill who God sent to help me cure my sickness . just a few moment with these great man he cured my infection His herbal remedy is the only permanent solution to Seizure. i want you to know that all hope is not lost until every thing is done if you also have these following infections contact his email drlewishill247@gmail.com

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  10. My son recently started having grand Mal seizures at 16 years old. We were prescribed Kepler. We decided NOT to take the medicine and go with a Modified Atkins Diet that entails feeding our son 15 carbs a day with lots of healthy fat. He eats a lot of grass fed beef, free range eggs, organic low crab veggies and is doing fantastic! We could tell a difference in him by the 3rd day. This is not alternative or junk science. Dr. Lewis hill at Johns Hopkins has been championing this diet for years and has been really successful. Doctors are really resistant to this therapy but it works!. Read "Grain Brain" for why it works. He also takes taurine which helped stop the night time teeth grinding, jerking, and unrest in his sleep (also known to stop seizures). And he takes cur cumin as a brain protestant that raises seizures.one day came across Albert post thanking Dr Lewis hill for curing his son seizure problem, and i got the contact of Dr Lewis hill i quickly contacted him then he made me to know that the medication is 100% permanent cure, and that was how i got the medicine which i used for my son, after which i took my son for medical test It worked! Over a year now, my son have not show any symptoms of seizure and I believe my son is cure if you need his help email him on drlewishill247@gmail.com

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  11. Nice post, impressive. It’s quite different from other posts. Thanks for sharing.
    Herbal Incense

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  12. This is quite interested information, it helps us a lot. Keep publishing and best of luck for your next blog.
    Herbal Incense

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  13. HERBAL MEDICATION CURED MY STEP-SON FROM EPILEPSY

    I have to share this testimony to help someone who is desperate for a total cure from seizures like I was for my Step-Son. I have come to understand that when we are determined for a change we can accomplish anything. After years of using all recommended epilepsy and seizures medications without a single break, my boy finally found the medication that nailed his seizures to an end. My step son was diagnosed of epilepsy; his seizures became so frequent that I and his mum spend time in ER in critical days. He was a young man growing up with a lot of goals to accomplish. But tragedy struck when he had his first seizure. Before then, he complained of dizziness, weakness, and unstable walking at times, which he took medications for as we didn’t see it as anything serious.

    On that fateful day we were having family reunion when he fell down and convulsed. He ended up in ER. After he recovered, we all went back home thinking it was just a minor health issue. The next day, while he was bathing, he had another seizure we rushed him to the hospital where the doctor conducted EEG and MRI test on him, he was found to have epilepsy and was placed on several medications. He took Vimpat (lacosamide), Dilantin, Lamictal and other drugs advised by his doctor. The side effects of these drugs were enormous. He complained of different symptoms which our visit to hospital shows that his medications were having effects on his health. It got to a stage he attempted suicide two times. I and his mother were extremely in deep trauma and his health also affected his siblings, watching their brother fall on several occasions wasn’t what we want anymore.

    We embarked on a desperate search for a cure. We changed English medications yet his seizures were frequent. I discussed his case with a colleague whose daughter seizures were far worse than his; he told me his daughter Neurologist referred HILTON to him when Pharm. Meds became too critical for her health and it worked perfectly. I discussed with my son’s Neurologist about Herbal treatment, he encouraged to try HILTON. He assured me that he believed in Herbal treatment and has heard good records of the HILTON from his past patients.

    I read seizure blogs, saw a lot of good news and positive comments that confirms what my colleague told me about HILTON. I contacted Dr. Mohan, fortunately I got a quick reply and told him about my son’s case, I gave him his medical reports, when we received HILTON, we had full expectation that our son will find total rest from seizures, 2 months using HILTON, his frequent seizures totally reduced. After finishing his treatment, more than 4 years now, he has been totally seizure free. HILTON did not disappoint us. If you want a cure from seizures contact Dr. Mohan via his email drajaymohanbose@gmail.com or blog via www.seizurecure.blogspot.com

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  14. Good day just want share a short testimony how what Dr Greene change my life for the better my son had epilepsy seizure for about 11 years its was never a good time until meet Dr Greene who introduced me to his product he administered it for about 6 months and his life change i mean he was totally free am so happy words cant explain my joy in my heart if you in need of help email drantoniogreene@gmail

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  15. I am Shelley from Los Angeles,California, I want to testify on how i got cured from tinnitus, I have suffered from ringing ears since the year 2011 with so mush pain,that i have to spend so mush money getting pain relief in the hospital, and I have visited several doctor ,but all to no avail, my world was gradually coming to an end because of the buzzing sound in my right ears, until i saw a post in a health forum about a herbal Dr Williams who use herbal portion in curing people from different kind of diseases including tinnitus, at first i doubted if it we be able to cure me, but i decided to give it a try, when i contacted this herbal doctor via his email, he prepared a herbal portion and sent it to me via courier service, when i received this herbal medicine, he gave me step by step instructions on how to apply it, when i applied it as instructed, i was completely free from tinnitus just for 1 months of usage,i we recommend this to all my friend family in the world today who still suffering from tinnitus you can contact him through his email on drwilliams098675@gmail.com for help.

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  16. I was diagnosed in 2006 with multiple sclerosis, the only symptoms at that time were falling and legs hurting and moving all the time. I remember no symptoms at all until last year. I went into full seizure mode, I was put on Avonex. I had the symptoms of that medication every day for 13 weeks, I mean I was so sick every day. I stopped that medication and a few days later I was back to my normal self. Then a few weeks later I started having attacks every week and I was really bad. It's like one long attack every day. My upstairs neighbors cause me great anxiety every day. I have gotten a new neurologist and she started me on the Copaxone and I didn't know what to expect, I knew I hurt from when I wake up until I go to sleep.I lost touch with reality.I started on Health Herbal Clinic multiple sclerosis Disease Herbal formula in June 2017, i read alot of positive reviews from patients here in the United States on their success rate treating multiple sclerosis through their Herbal formula and i immediately started on the treatment. Just 7 weeks into the Herbal formula treatment I had great improvements with my Vision and coordination, my stiffed, rigid muscle had succumbed. I am unbelievably back on my feet again, this is a breakthrough for all multiple sclerosis sufferers, visit Health Herbal Clinic official website www. healthherbalclinic. net or email info@ healthherbalclinic. net.

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  17. "Dear Williams, I wanted to drop you a note and say 'THANK YOU', from the bottom of my heart. I was browsing the Internet back in AUGUST this year looking for help, any help. I have been diagnosed with tinnitus that was extremely loud especially at night when going to bed. Thankfully enough I accidentally came across so many people thanking Dr Williams for his medication. I thought I should give his medicine a try. I ordered his medicine and went to my local health store and bought the herbs and vitamins and the other more basic ingredients for his medicine and then started his medication that day. After 7 days I didn't see any change so I thought 'here we go again'. But it wasn't another disappointment. By the end of the 4th week on a bright Monday morning, all the noses and the awful bloated feeling just stopped. I immediately went to my doctor and guess what? The ear ringing was not there anymore. I was so happy!

    Thanks to your advice, I now know how to prevent any future tinnitus formation and the array of symptoms that goes along with it, Thank you so much for everything!"for more information on how to get his medication you can email him on drwilliam098675@gmail.com

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  18. ALL THANKS TO DR WILLIAMS WITH HIS HERBAL PORTION I WAS COMPLETELY CURED FROM A TERRIBLE TINNITUS.
    How can I ever stop thanking Dr William for the great deed he have done for me, i got an accident when I was 27 years old, from that day on i started experience ringing ear (tinnitus) i have taken all the western drugs prescribe by various doctor but to no avail . my tinnitus was very loud in the afternoon and I sleep less at night because of this problem i stop my work, few days later i was going through the Internet and I saw a post of so many people testifying about Dr William herbal remedies on how they was being cure for over many years suffering from tinnitus the story Really motivated me that I have to speak with my husband about it, and he said i should give him a try, i contacted Dr William and explain all i have be facing in my life. He assured me that everything is going to be fine if only I can get his herbal portion, i said yes and I requested for it, few days later the herb was sent to me in Kuwait,i started using it as instructed by Dr William for me to take it for 21 Days which I did, can you imagine after talking Dr William herbal medicine for just two weeks i started experience results, it was like a miracle,and now i am permanently cure from this terrible tinnitus, i promise that am going to publish his herb on thing my last breath for the great deed he have done for me. For those with similar ear problem should please contact him on his email address drwilliams098675@gmail his a good man and am proud of him.

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  19. NATURAL & EFFECTIVE TREATMENT TO SEIZURE: Our son has temporal lobe epilepsy, He has seizure and had a grand mal with rage, Our son's seizure always occur twice in a week according to EEG results. We had used several medicine which include: 600 Epitol 100 Zarontin,
    150 Epitec X2 Daily, Topomax lasted for about 3 days, but I put an end to that due to my son losing weight and being lethargic. I recently got dr williams herbal medicine,that's a natural medicine that cure my son Epilepsy with no side effect. It is an herbal medicine. it is a permanent cure and effective treatment of Epilepsy, for more info, you can also contact Dr.William with this email drwilliams098675@gmail.com for advice and his product

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  20. Dear FRIENDS,
    now i have a beautiful smiling face and so are which you all, after reading my testimony. My name is Nita, I am 31 years old,
    And live with my boyfriend in Belgium, but I am UK. I have been diagnosed with epilepsy since birth, which the Doctors told me this condition was forever. I know how you feel and what you are going through, I don't have a baby though. I just want to tell you that I am cured now,with the help of doctor williams herbal medication, the last time I can remember having epilepsy was January this year. It was a long and difficult process but I am so thankful to dr williams I don't have it anymore. Please know you can be cured too. Accept what happened and is happening to you, forgive, let the past go, love yourself and others unconditionally and be thankful. Everything happens for a reason. If you want to be in contact with dr williams and share your own testimony and thoughts feel free to e-mail him on; drwilliams098675@gmail.com for advice and for his product.

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