July 17, 2009
What are the NIH results?
To be clear, Bertrand's blood was drawn at the NIH and they're running tests to try to confirm or deny both the Schinzel-Geidion and Retts Syndrome suspicions. We'll know those test results within 3-4 weeks. Earlier than that, however, we'll be receiving a report (2-3 weeks) and photographs (1-2 weeks) of Bertrand. The report will contain the opinions of Drs. Stratakis, Raygada and Rennert and their recommendations, including conducting a 24 hour EEG and prescribing anti-seizure medication. The medical photography of Bertrand should be cute (his face, profile, hands, feet, etc.) so I can put it on the blog once I get it.