Overcoming Movement Disorder

June 21, 2009

18 Month Photos

Posted by Cristina Topics: picture

2 comments :

torresliliJune 21, 2009 at 1:42 PM
Estan preciosas! He is a very seriuos young man! I love all of them!
Muchs besos,
Titi Lili
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UnknownJune 22, 2009 at 9:27 PM
I loved all the pictures, he looks adorable. I think he looks so cute with the hat, he is doing his version of "viejito" or Cristy"s version of "el monstruo". He also resembles Matt with his thoughtful stare. Beautiful mix of both of you.
XOXO
Love, Mami
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N-glycanase (NGLY1) deficiency awareness, diagnosis, research, and support.

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Bertrand is the first case of N-glycanase deficiency in medical literature.

It took 4 years and a team of remarkable researchers to receive this diagnosis.

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The article from The Journal of Medical Genetics is open access. (Bertrand and parents are "Trio 2" in the study.)

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What do you do if your child has a condition new to science?

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Born in December 2007, Bertrand is a charming, serious, young man. He lives in Salt Lake City, UT and has global developmental delays (0-6 months-old developmental), brain damage, intractable multifocal epilepsy, peripheral neuropathy, liver damage, osteopenia, cortical visual impairment, movement disorder, and alacrima (lack of tears) resulting in corneal erosion.

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