Dr. Longo, a physician/scientist here at the University of Utah, and a leading expert on metabolic disorders such as Bertrand's, will see us on Monday, March 16th.
I emailed him, as a desperate parent and as a fellow professor, and he immediately pushed us to the front of the waiting list.
We are very grateful.
UPDATE: It is worth mentioning, there is typically a 6 month plus wait time to see Dr. Longo.
I am so happy that Bertrand will be treated V.I.P. He is V.I.P. to me and to everyone who loves him. Matt you wrote from your heart and nobody can resist it. Felicidades por eso! Bertrand will be in very good hands, that is my hope and prayer.
ReplyDeleteWith my love, Mami
Hey there :)
ReplyDeleteI found you from the Inspire board. My daughter has Gaucher's Disease type 2 or type 3, another lysosomal storage disease. I couldn't tell which disease your son has. I'd love to add him to my "special kids" blogs page. Just le tme know if it is okay.
Carrie
http://www.littlemisshannah.com