March 21, 2011

Milestones? Inchstones? By any measure: Progress!

Matthew, Bertrand & me (+Victoria at 37 weeks 3 days gestation).

This morning, Matthew and I woke up to the sound of Bertrand having another of his long, looping seizures. Not a good sound to wake up to. Just when some of Bertrand's other seizure types are lessening, another pops up. It's like whack-a-mole.

(We need help identifying Bertrand's weird looping seizures, so I'll post a video later this week. If we can identify these seizures, then maybe we can treat them or know why his medication either causes them or doesn't work on them.)

Understandably, I think, watching Bertrand suffer from the seizure itself and it's aftereffects, coupled with the prospect of facing yet another medical hurdle dampened my spirits. To cheer me up, Matthew began to list Bertrand's progress, regained skills (*) & new ones.

Weight-loss: over 1 pound in 2 weeks
Weight-bearing: up to an hour daily in 2 weeks
Bearing weight on legs*
Taking steps with gait trainer*
Playing in the bathtub*
Picking-up toys on 1st try
Smiling at known & unknown people
Demonstrating recognition of people & things
Tracking adults, children & animals*
Vocalizing with people*
Searching for the source of a sound

This is all in addition to other items we are grateful for, starting with the fact that our precious son is alive AND HAPPY. He will meet his little sister and she will know him. He doesn't depend on a g-tube, trach, vent, oxygen... he is relatively healthy with no recurring infections, and much more. We are truly fortunate--even if Bertrand now has weird looping seizures. :)

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