July 23, 2010

Maracas and malaise

The Good

Daddy was sitting next to Bertrand when suddenly the maraca started making noise.

Daddy turned and saw this:

Yes, Bertrand picked up the maraca and started rattling it. He hasn't done anything like that in two years!

The Bad

At the same time, we see more seizure control slipping away.

For the most part, they're not visible seizures. Rather, there are stretches where Bertrand returns to his sour, foggy malaise of months ago. Each day we seem to get slightly fewer smiles than the day before.

We're going to speak to his neurologist about trying new seizure control medications as the steroids lose their effect. We won't waste any time, since for the most part, his seizures are still under relative control, and now is our best chance to try a new medication.


  1. So happy to see the maraca move, too!


  2. His maraca shaking really hits home how much he get it. Amazing.