May 11, 2010

"The Boy Who Discovered His Lungs"

There once was a boy named Bertrand
With no fine motor or tears from his tear gland
Then along came steroids
And peace was destroyed
Tears and yells came hand in hand
Yes people, I am finally losing my mind. I want to believe (and so I will) that there are finally some positive changes coming from Bertrand's ACTH treatment. We haven't seen a myoclonic, tonic, or atonic seizure in 4 days--this tops his 3 day "seizure free" record on the ketogenic diet. And as for the seizures we don't count, his eye myoclonus and absence seizures seem greatly reduced. That said, apparently Tarzan is Bertrand's real father. This is the only explanation I can come up with for the unnatural sounds and volume coming out of my once soft-spoken little boy. Oh, and a wolverine is apparently Bertrand's real mother, but more on that some other day. :)

1 comment :

  1. Wow, that could be nothing but great news! Is he crying full tears all the time now? Yelling is very healthy!