March 16, 2010

Developmental evaluation: No progress (formally)

Bertrand's early intervention team met at our house this morning for his six month evaluation.

According to the E-LAP testing, between 15 months and 27 months, Bertrand has regressed across the board:

Gross motor development dropped from 7 months to 6 months.

Fine motor remained at 4 months.

Cognitive development dropped from 6 months to 4 months.

Language development dropped from 5 months to 4 months.

Self-help stayed at 0 months.

Social/emotional development dropped from 6 months to 3 months.

That said, everyone at the meeting agreed that the test wasn't able to measure the more fine-grained distinctions in Bertrand's case, and many of them believed that he has actually progressed socially and emotionally.

The formal evaluation fits in with the theories and laboratory evidence surrounding Bertrand's case--that he has a progressive, neurodegenerative disorder.


  1. I'm sorry. That can't be any fun to hear, even though Bertrand seems to be doing fantastically on the less-tangibles (Tears! Syllables!) We're thinking about you guys.

    NB I thought I had commented on this earlier but hadn't - hence the double-dipping.

  2. I am so sorry. You have worked so hard with your ds. I know I am far away, but if you need a shoulder--let me know!