March 2, 2010

25 Million+, It is time to care about rare disease.


Rare Disease made the final round for the 2010 Change.org Top Ideas Contest. This is great news and obviously a topic that is top of mind for many both in and outside of the rare disease community! This idea beat out hundreds of others to make the finals and now must reach the top 10 out of 60 final ideas.

The 10 most popular ideas will be presented to relevant members of the Obama Administration, and Change.org will subsequently mobilize its full community to support a series of grassroots campaigns to help turn each idea into reality.

Voting started Monday, March 1 at 1 p.m. EST and continues through Friday, March 12 at 5 p.m. EST. You can vote every single day, so it is important that you put this on your calendar to do every morning to ensure that this idea wins!!!

This is truly an amazing chance to make rare disease a health priority in the USA (and globally). There are more than 25 million people in the USA alone with rare disease with millions of family members touched by rare disease as well.

Please vote at www.change.org

You can vote every day through March 12 - ask family and friends to do the same!

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