tag:blogger.com,1999:blog-3911918894908593884.post2387023503404000924..comments2023-09-14T01:35:31.437-07:00Comments on Overcoming Movement Disorder: Building Skills for LifeCristinahttp://www.blogger.com/profile/05624255220638749596noreply@blogger.comBlogger13125tag:blogger.com,1999:blog-3911918894908593884.post-73300965234133828102012-03-27T12:28:21.994-07:002012-03-27T12:28:21.994-07:00adored this post
this makes so much sense "b...adored this post <br />this makes so much sense "but we learned that doing a few things intensively and consistently yields better results than doing many things sporadically."Floortime Lite Mamahttps://www.blogger.com/profile/07988840423227903784noreply@blogger.comtag:blogger.com,1999:blog-3911918894908593884.post-62462171164119047432012-03-25T10:50:08.622-07:002012-03-25T10:50:08.622-07:00Thanks, Rose-Marie and Starrlife! The journey is ...Thanks, Rose-Marie and Starrlife! The journey is a constantly changing one. Therapy priorities shift by the week/month, so we're constantly re-evaluating based on his readiness. But our overarching priority, Bertrand's happiness & well-being, guides all of our decisions. :) It hasn't always been easy, but it's getting easier. It's funny how a 2nd child has made that possible! :) Best to you and your families!Cristinahttps://www.blogger.com/profile/05624255220638749596noreply@blogger.comtag:blogger.com,1999:blog-3911918894908593884.post-73192510738607853612012-03-25T05:24:11.026-07:002012-03-25T05:24:11.026-07:00Wonderful post and happy to come over from Barbara...Wonderful post and happy to come over from Barbara's blog carnival! The issues of Ei and amount of therapy are hotly debated in DS circles too and I'm all for studying what is the best for each individual family and child but it's a developmental journey for us parents too isn't it?starrlifehttps://www.blogger.com/profile/10109817790942031827noreply@blogger.comtag:blogger.com,1999:blog-3911918894908593884.post-6681855612920745432012-03-18T08:17:26.548-07:002012-03-18T08:17:26.548-07:00You have hit such a key concept--
PRIOROTIZE!!!
I...You have hit such a key concept--<br />PRIOROTIZE!!! <br />It's so easy to burn everyone out (from kids to families to therapists) trying to tackle every possible goal that "could" benefit our kids with multiple challenges. But identifying and focusing on the most pressing, most beneficial few makes therapy and follow-through so much more reasonable and goals attainable. Very wise!! It took us the birth of our second child to reach this point too. Funny how their arrival causes you to prioritize by necessity. :0)<br /><br />Congratulations to Bertrand and you both on his new accomplishments!Rose-Mariehttps://www.blogger.com/profile/01125239149179291715noreply@blogger.comtag:blogger.com,1999:blog-3911918894908593884.post-54901416667721556672012-03-16T17:55:49.790-07:002012-03-16T17:55:49.790-07:00Cristina - <3!Cristina - <3!Barbarahttp://www.therextras.comnoreply@blogger.comtag:blogger.com,1999:blog-3911918894908593884.post-601089457785825462012-03-15T18:33:38.231-07:002012-03-15T18:33:38.231-07:00Barbara, don't lose hope! You ARE making a dif...Barbara, don't lose hope! You ARE making a difference. Slowly but surely, I think we all will. :) Blogging about the intensive model as much as possible is key. Just letting parents know that there IS another way will eventually make a difference--at least for Bertrand and little John, it already has! :) <br /><br />Ashley & I will keep testifying and spreading the intensive therapy gospel along with you. :)Cristinahttps://www.blogger.com/profile/05624255220638749596noreply@blogger.comtag:blogger.com,1999:blog-3911918894908593884.post-53904531397389787392012-03-15T18:03:18.984-07:002012-03-15T18:03:18.984-07:00Ashley you are so on target with what needs to be ...Ashley you are so on target with what needs to be done - a major shift in how therapy is dosed. I've been writing about that issue for the past 4 years. (Guess that says I've not been very effective. :( ) <br /><br />But, with parents coming around to the idea, there is hope.Barbarahttp://www.therextras.comnoreply@blogger.comtag:blogger.com,1999:blog-3911918894908593884.post-12640537669942437482012-03-15T09:05:11.377-07:002012-03-15T09:05:11.377-07:00So true, so true, so true. The Early Intevention ...So true, so true, so true. The Early Intevention model of therapy--one hour once a week--is so often ineffective. In the last year, little John has made more progress in a few weeks of intensive programs (feeding, OT, and now PT) than he made in the rest of the year combined. Why does the therapy community at large not move toward more intensive programs? We had to work with doctors in Austria for the right intensive feeding therapy (thankfully online), travel to Alabama for intensive OT, and travel to Detroit for intensive PT. All the while, we were living in major metropolitan areas (San Francisco, Chicago) that should have had the very best sevices in the world. The intensive approach should be more widespread! What can we do?<br /><br />Hooray for you all, and hooray for B!Ashleyhttps://www.blogger.com/profile/14928005707424379276noreply@blogger.comtag:blogger.com,1999:blog-3911918894908593884.post-92031274009150002442012-03-14T17:57:58.006-07:002012-03-14T17:57:58.006-07:00I'm beginning to think I cannot help a family ...I'm beginning to think I cannot help a family jumpstart to the building skills for life in the early phase after diagnosis - unless they are ready. Seems like some parents have live through the trial of "the more therapy the better" before they realize the potential to focus energy on what will mean the most to the family and their child. <br /><br />You can be sure your words will be reappearing in my blog carnival! <br /><br />Thank you so much, Cristina!Barbarahttp://www.therextras.comnoreply@blogger.comtag:blogger.com,1999:blog-3911918894908593884.post-56436128908179641132012-03-14T16:17:39.421-07:002012-03-14T16:17:39.421-07:00Thank you, ladies! Your encouragement means a lot...Thank you, ladies! Your encouragement means a lot. :) We couldn't this without the support of our family and friends. We are very lucky to have you all in our lives as well as our beautiful, wonderful boy. :) XOXOCristinahttps://www.blogger.com/profile/05624255220638749596noreply@blogger.comtag:blogger.com,1999:blog-3911918894908593884.post-81179959974386240982012-03-14T13:39:31.401-07:002012-03-14T13:39:31.401-07:00ok, this totally made me cry...I am so happy he is...ok, this totally made me cry...I am so happy he is making great progress. I love it & I know how hard you work...I also know it gets tiring...so good job to both of ya!Our Journey to Beating Epilepsyhttps://www.blogger.com/profile/02407906124959266776noreply@blogger.comtag:blogger.com,1999:blog-3911918894908593884.post-24073599672217780052012-03-14T02:56:22.088-07:002012-03-14T02:56:22.088-07:00WONDERFUL! :)WONDERFUL! :)Tara Bennetthttps://www.blogger.com/profile/18445133464180170403noreply@blogger.comtag:blogger.com,1999:blog-3911918894908593884.post-33242696653478093402012-03-14T00:36:56.788-07:002012-03-14T00:36:56.788-07:00Oh, what a beautiful post! It warms my heart to re...Oh, what a beautiful post! It warms my heart to read about Bertrand's gains!<br /><br />I still struggle with some of this stuff with BOTH my kids. Jade is capable of getting her own snowsuit on, really, but it's hard for her and she complains and she dawdles, so often I find myself doing it for her, just so it gets done. I have to remind myself that it's IMPORTANT life skills I am forcing her to learn by just saying, "No, I know you can do it yourself, and you have to at least try."Fawnhttps://www.blogger.com/profile/10049727418673399133noreply@blogger.com