tag:blogger.com,1999:blog-3911918894908593884.post2318035365046379231..comments2023-09-14T01:35:31.437-07:00Comments on Overcoming Movement Disorder: Another DrugCristinahttp://www.blogger.com/profile/05624255220638749596noreply@blogger.comBlogger5125tag:blogger.com,1999:blog-3911918894908593884.post-4690842054416965662010-12-06T11:36:40.155-08:002010-12-06T11:36:40.155-08:001st I've got to say...that little video of him...1st I've got to say...that little video of him watching that movie is just so precious! I just wanted to cry it was so cute...his little giggle is so freaking cute!!! <br /><br />Sounds like you are in the same boat as us...we are thinking about adding in meds...I am so sick about but we have to do something else. My worst fear is that the seizures will get worse from the meds. But, I too have been thinking about Lamicil over and over...however "C" is very sensitive to everything...so I'm sure he'll have the allergic reaction! I've been chatting w/parents on the yahoo group last week...you can see some of their responses to "question about meds & drop seizures". I don't know if this is true, but one lady said Dr.Kossoff (from John Hopkins) reccomends Zonegran w/the ketogenic diet. She said add 25mg in the morning then 2 weeks later add 25mg at night. <br /><br />A few moms said Banzel works well for Drops. I wish meds were "easy"!<br />Keep me posted plese!Our Journey to Beating Epilepsyhttps://www.blogger.com/profile/02407906124959266776noreply@blogger.comtag:blogger.com,1999:blog-3911918894908593884.post-49089398661400434312010-12-06T06:27:05.812-08:002010-12-06T06:27:05.812-08:00It sounds like a very educated choice. After read...It sounds like a very educated choice. After reading the side effects I probably would choose the same thing.amyhttps://www.blogger.com/profile/07231879088310981603noreply@blogger.comtag:blogger.com,1999:blog-3911918894908593884.post-21841309855596200492010-12-06T05:04:58.529-08:002010-12-06T05:04:58.529-08:00Good luck with Lamictal. We haven't tried that...Good luck with Lamictal. We haven't tried that one yet because of the slow titration and urgency of treating Cody's spasms when Vigabatrin failed. We added Depakote to his coctail with good results so far and no side effects yet. I totally understand how you feel about all the meds. No fun but somehow we, as special needs parents, pick up and keep doing what we have to! <br /><br />Loved the last video too. Very cute!<br /><br />Laura GAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-3911918894908593884.post-16105940893744483602010-12-05T19:59:16.024-08:002010-12-05T19:59:16.024-08:00We're keeping our fingers crossed for you all!...We're keeping our fingers crossed for you all!Fawnhttp://fawnahareo.comnoreply@blogger.comtag:blogger.com,1999:blog-3911918894908593884.post-79207568004710964512010-12-05T19:48:18.559-08:002010-12-05T19:48:18.559-08:00I don't envy your decision. But you seem to h...I don't envy your decision. But you seem to have made a prudent choice. Any word on when you'll get to take Bertrand to an epileptologist? I know the seizures are devastating--believe me I know--but he really does look good in all the pictures and video.Ashleyhttps://www.blogger.com/profile/14928005707424379276noreply@blogger.com